Design and evaluation of a patient-oriented language for the representation of care protocols

Design and evaluation of a patient-oriented language for the representation of care protocols

Amira Derradji Christine Verdier

Univ. Grenoble Alpes, LIG, 220 rue de la chimie, F-38000 Grenoble

ARCAN SYSTEMS, 4 rue Edison, F-69500 Bron

Corresponding Author Email: 
amira.derradji@imag.fr,christine.verdier@imag.fr, amira.derradji@arcan.fr
Page: 
123-146
|
DOI: 
https://doi.org/10.3166/ISI.21.2.123-146
Received: 
N/A
|
Accepted: 
N/A
|
Published: 
30 April 2016
| Citation
Abstract: 

Home care is currently widespread. Chronic patients represent a good target for home-care because (i) the care protocol is precise, clear (e.g peritoneal dialysis, type 1 diabetes), (ii) patients don’t need hospital stay (except in case of emergency), (iii) patients perfectly know their chronic disease. The main problem is that the care protocol is often oral and when written, protocols are dedicated to government agencies or social insurance. Then, two problems arise: the lack of digital support for chronic disease protocols and the impossibility to introduce the patient’s expertise in the care process. We propose an approach to address these two issues: (i) a digital care protocol to help both patients and physicians to follow the care process, gather medical data, send alerts and help the patient in the everyday life and keep every care’s stakeholder informed, (ii) an adaptive digital care protocol that introduces filtered patients expertise to improve the protocol and the care. As a first step, we propose in this paper a metamodel and a graphical notation to formalize this research and results of an experiment developed to validate the metamodel proposed. We illustrate the proposition with some screenshots.

Keywords: 

e-health, care protocol, expert patient, medical software application

1. Introduction
2. État de l’art
3. Proposition de méta-modèle du protocole de soins
4. Expérimentation et validation du méta-modèle
5. Spécification de la solution
6. Conclusion et perspectives
Remerciements
  References

Ardissono L., Di Leva A., Petrone G., Seg-nan M., Sonnessa M. (2005). Adaptive medical workflow management for a context-dependent home healthcare assistance service. In International workshop on context for web services (cws 2005), p. 59-68. Torino, Italy, Elsevier.

Ayachi Ghannouchi S., Ghannouchi S.-E. (2008). Une expérience de bpr dans un hôpital tunisien. Systèmes d’Information et Management (French Journal of Management Information Systems), vol. 13, no 1, p. 89–116. Consulté sur http://revuesim.org/sim/article/view/218

Bernonville S., Vantourout C., Fendeler G., Beuscart R. (2013). A business process modeling experience in a complex information system re-engineering. In stud health technol inform, vol. 192, p. 969-969. Pub Med.

Bricon-Souf N., Dufresne E., Watbled L. (2005). Integration of the cognitive knowledge of activity in a service oriented architecture in the home care context. In Studies in health technology and informatics, vol. 116, p. 923-928.

Cabanac G., Derradji A., Jaffal A., Louëdec J., Rojas G. E. J. (2015). Forum jeunes chercheurs à inforsid 2014. Ingénierie des Systèmes d’Information, vol. 20, no 2, p. 119–143.

Collectif-DGOS. (2012). Recommandations pour la mise en oeuvre d’un projet de télémédecine: déploiement technique: Urbanisation et infrastructure. Consulté le 14.01.2016, sur http://social-sante.gouv.fr/

Dadam P., Reichert M. (2000). Towards a new dimension in clinical information processing (keynote). In Proc. medical informatics europe conference (MIE’00), p. 259-301.

Dang J., Hedayati A., Hampel K., Toklu C. (2008). An ontological knowledge framework for adaptive medical workflow. Journal of Biomedical Informatics, vol. 41, no 5, p. 829 - 836.

Derradji A. (2015). Un langage orienté patient pour la représentation de protocoles de soins auto-adaptatifs. In 33e congrès inforsid, p. 167-182. Biarritz, France.

Dupuy-Chessa S. (2006). Modélisation en interaction homme-machine et en système d’information: à la croisée des chemins. Habilitation à diriger des recherches, Université de Grenoble, France.

Flory A., Verdier C., Sassi S. (2006). Nouvelle interfaces pour la représentation de l’information médicale: vers une prise en compte de l’approche métier. In 24e congrès inforsid, p. 177-197. Hammamet, Tunisie.

Fondement F., Baar T. (2005). Making metamodels aware of concrete syntax. In First european conference on model driven architecture - foundations and applications (ecmda-fa 2005), p. 190-204.

Greiner U., Mueller R., Rahmi E., Ramsch J., Heller B., Loeffler M. (2005). Adaptflow: Protocol-based medical treatment using adaptive workflows. Methods of Information in Medicine, vol. 44, p. 80-88.

Han M., Thiery T., Song X. (2006). Managing exceptions in the medical workflow systems. In 28th international conference on software engineering, p. 741-750. Shanghai, China.

Ilahi L., Ayachi Ghannouchi S. (2013). Improving telemedicine processes via {BPM}. Procedia Technology, vol. 9, p. 1209 - 1216. Consulté le 14.01.2016, sur http://www.sciencedirect.com/science/article/pii/S2212017313002892

Leonardi G., Panzarasa S., Quaglini S., Stefanelli M., Aalst W. Van der. (2007). Interacting agents through a web-based health serviceflow management system. Journal of Biomedical Informatics, vol. 40, p. 486-499.

Mans R. (2011). Workflow support for the healthcare domain. Thèse de doctorat, Université Eindhoven, Pays-Bas.

OMS. (1986). Promotion de la santé: charte d’Ottawa. Consulté le 14.01.2016, sur http://www.euro.who.int/

Picard R., Salgues B. (2008). Enjeux des TIC pour l’aide à l’autonomie des patients et des citoyens en situation de handicap ou de fragilité dans leurs lieux de vie. Consulté le 05.01.2015, sur http://esante.gouv.fr/

Quaglini S., Caffi E., Cavallini A., Micieli G., Stefanelli M. (2001). Simulation of a stroke unit careflow. IOS Press.

Zefouni S. (2012). Aide à la conception de workflows personnalisés: application à la prise en charge à domicile. Thèse de doctorat en informatique, Université de Toulouse, France.